Shadows and votes that go bump in the dark.

adhd, ASD, autism, equal rights, equality, human rights, politics, special needs, special needs parenting, voting rights

“I can’t, mama…I just can’t.”

It was the fourth night in a row that she was having nightmares. She couldn’t bring herself to discuss what they were about but my patience was wearing thin between waking with her brother at 1 a.m. and then her at 3 a.m. then him at 3:15 a.m…. You get the idea.

“Please, sweetheart. You can tell me. You can tell me anything. I’m not going to laugh or get mad. I just want to help.”

She curled her body tightly like a shell and burrowed her head into me. I marveled at how flexible she is and remembered that I once was that pliable. Nothing about me feels the same anymore. The child I was is such a distant memory yet so vivid. It was as if I was merely visiting the body of that child and she was my host. I wasn’t allowed to be a child for very long. With both children, I try to make sure that they don’t feel rushed to be older or attain milestones until they’re ready. Much to my own downfall at times now that we’re returning to co sleeping yet again.

“Maybe in the daytime. When the light is out…” I desisted in pushing for an explanation and realized that it was pointless. We both were exhausted and, whether she knew the cause of her nightmare or not, we were not going to find a solution while struggling to stay awake.

“Ok,” I kissed her head and combed her hair with my fingers trying to detangle the worst of her sleep steamed curls as best I could, “In the daylight. You’re right.”

She probably was having the same nightmares again. Reliving the past. Reliving the monstrous episodes I couldn’t save her from. The hidden dangers that every parent doesn’t want to face. From the small indignities my kids face when people stare at them in the midst of a meltdown to the offensive remarks from educators about them and to them. Then I think of the larger fears and my chest tightens. The abuse she lived through at the hands of others under the guise of “typical” kid behavior. I think about the kids living through such atrocities yet magnified with the brutality of our government inflicting it on them daily as they cage them.

I thought once again of the many families ripped from their children at the border. Of those seeking asylum only to face greater dangers than those they escaped. It makes me sick that we’re expected to continue living our lives in acquiescence to a dictator that risks our safety and liberty with every passing day. What world are we leaving for our children? Who am I to think that my voice or vote matters? Yet I keep trying.

I woke to a knee in the middle of my shoulder blades and resisted the urge to shove whoever was doing so from my body. The sheets were pinned in around me as I pulled loose and rolled out of my bed as silently as possible. It felt like a special martial arts move but I’m sure it looked more like an SNL skit.

My phone flashed red then purple so I knew I had texts and emails from known contacts waiting for me. It wasn’t reassuring. I knew what they most likely were regarding and that no matter how well I explained my point of view I wasn’t going to change their opinion. Normally I would walk away from a futile debate such as this but when it’s regarding your kids you don’t have a choice. More importantly, it’s a fight you can’t turn from. A reminder pinged for me to vote. I nodded to myself and hit “snooze” so it would remind me after breakfast.

There’s some salient truths to me that have become more evident because of my circumstances as a parent but also with the political quagmire we’re living through.

Everyone needs to vote. Each vote needs to count. Everyone deserves equal rights. There is no compromise over these three beliefs.

I mused to myself what might be if the ballots in Oregon didn’t go our way. For the millionth time I worried over our kids losing their services. Their rights being limited yet again. Our insurance premium going sky high, yet again, with no explanation and the discrimination obvious with every denial of service or therapy.

The old floorboards creaked as I tried to sneak to the bathroom and back. The morning temp had suddenly taken on the chill of winter. I welcomed it and yet my body felt so much older this year. I rolled my neck and listened to the internal sound of a cheap tourist rain stick I once was gifted as a kid. It sounded like my vertebrae were tumbling down inside me.

From the dark I heard a giggle and the motion sensor light went off above and behind my head in the hallway as the distinctive pounding footsteps of Owen rang out. He sped past me and threw himself headlong into the bed alongside his sister. I now had a ten inch span of space to try and lay down in if I wanted to attempt to sleep once again. It was almost four in the morning. I sighed, climbed in with my back to them, and pushed back slowly until their little bodies accommodated me. They giggled like it was a game.

Owen popped up like a prairie dog, “OOO! I be right back!”

Our bodies were jarred in every direction as he exploded from the bed and ran into the front room. He returned just as quickly with his thundering little feet. Suddenly the room was lit with the light of his iPad and filled with the sounds of “Big Block Singsong”.

Leonora rolled over and groaned in a whimper. I shifted my body to lay on the opposite side of her so she could sleep. Owen snuggled closer to me and happily held the tablet to share with me.

“Owen, turn it down… please.”

“Ok, ok,… th’orry.”

“It’s ok, baby…. Kindness with each other. Sister hasn’t slept well. Let’s be really quiet.”

“Ooooo…okay…okay….LOOK!! I found favorite!”

He excitedly, and with good intentions, thoughtfully shoved the iPad into my face with one of my few favorite episodes from the show playing. He meant it to be kind but managed to bloody my lip instead.

So many interactions are like this at times. How do I explain? Should I explain? Lately I don’t try to explain anymore unless I have to. A bit of the fight has gone out of me. There’s too many battles in any given day that are physically near me and emotionally around me. Battling schools, battling bullies, battling attitudes. It’s too much sometimes.

I dabbed my lip with some coconut oil as I made their breakfast. The scab would last for a bit. It meant another week of dodging people. It’s too hard to explain my injuries at times. They’re not as frequent as they used to be. How do you explain that your kid hurts you? If you try, the unsolicited advice is overwhelming, hurtful for the most part, and the worst reaction is the incredulity. The disbelief that this toddler is physically abusing you. It’s one of those topics about autism most parents are reluctant to admit or discuss. It’s as if you’re admitting that you’re a failure as a parent.

Owen climbed on my lap later and touched my lip, “OOO, you got an owie!”

“I know. Do you remember how this happened?”

He didn’t respond. I waited for him to look at me. He didn’t, “No.”

“You hit me with the iPad. It was an accident though, I know. Do you remember?”

He leaned against me and grunted with frustration, “YES!”
He pushed away from me in a huff and ran into the other room.
I gave him a minute and followed after him. As I approached his sister’s closet, I could see his bare feet sticking out from underneath her dresses. I smiled and pushed the dresses apart gently, “Hi, buddy.”

His little face smiled up at me and then quickly scrunched up as he covered his face, “No.”

“I’m here when you went to talk, ok? I’ll sit right over here and wait.”

I touched his cheek and sat on the end of the bed.
He scooted towards me without opening his eyes and crawled up on the bed next to me. I began to rub his back and he relaxed against me.

“I know you didn’t mean to hurt me.”

He rolled over and hugged me around my head in his octopus style. I began to cry and he laughed, “No do, mama!”

We both laughed and I wiped my tears away, “I’m just so happy when you hug me.”

He laughed and agreed that I was fortunate in his magnanimous way, “Yeah.”

Leonora looked concerned as I came back into the room, “It’s ok, honey.”

She hugged me tightly, in a whisper, “You ok, mama?”

“Yeah. Mama is fine. Owen is ok too.”

She kept hugging me as we swayed slightly, “Did he mess with my clothes?”

I laughed and with a hint of mischief theatrically mocked, “NO, no way, just the ones he wiped his face on.”

Her eyes were wide as I smiled into them. She growled like a cat and went running in to check her dresses. Laughing, knowing that I was kidding, but checking nonetheless.

I checked my phone and saw that our Governor had won the race and we once again had Kate Brown. I sighed in relief and read over the ballot results once again. I made a silent wish that the rest of the country fair as well and hoped against hope that our country will begin to behave with decency towards each other once again. An article popped up about the children being held in detention centers. History repeating itself.

It wasn’t intended to be aloud but I found myself announcing, “How could anyone deny kids their freedom? How could anyone treat people this way?”

My husband looked at me with sadness, “They don’t think kids deserve any rights.”

I scoffed and shook my head, “No, they don’t think ANY of us deserve equal rights.”

I made the mistake of opening social media only to discover old friends and extended family battling each other over semantics. I’m just happy that they voted and said a wish for all of us that we see a better world for ourselves and our kids.

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One mom to another.

equal rights, equality, freedom of speech, Me Too, politics, Times Up

My open letter to Ashley Kavanaugh:

Dear Ashley,

I wanted to write to you and let you know that your composure during your husband’s time in front of the cameras is admirable. You were calm, brave, and reserved. My concern, like many parents, is what happens once those cameras have moved on.

As a parent, we worry about the safety and rights of our children. As a parent of children with special needs and one a survivor of assault, I implore you to please be a voice of reason to your husband and others in giving equal rights to all of us. That’s all any of us truly hope for and should expect. The chance to have a say over our own bodies, our health, our lives, the planning of our families.

Respectfully.

Amazing Things Do Happen

ASD, atypical, autism, inclusion, neurodiversity, parenting, special needs, special needs parenting

“Am I autistic?”
“Yes, honey,” I push a lock of hair behind her ear and watch the emotions flick across her face before she smiles knowingly, “Are you autistic?”
“Nope.”
“Can you tell me what it means again?”
“Sure.”
“Can you tell the other kids at Girl Scouts?”

I was stunned, proud, and bewildered yet again by this kid. This girl that never ceases to amaze me with her kindness, sensitivity, thoughtfulness, vulnerability, and, yes, her many wounds from the mistreatment of others. She desperately wants to fit in and be accepted yet many days this world doesn’t seem to be meant for her and it goes out of its way to show her so.

We watched a video recently, Amazing Things Happen. It popped up as a recommendation in my YouTube feed and my faith in the internet was restored. What a fantastic piece of work and a way to explain autism to kids, not only about themselves, but to others that want to understand how it feels. The first time we watched it she turned to me and said, “Can we watch it again?”

After the second time, she asked, “Can we show this to the other kids?”
“Yeah, is it accurate? Is this how you feel?”
She hugged me and whispered into my body, “It’s how I feel all the time.”

I cried not because I felt pity for her or any other kid that experiences the world as she does. I cried, like so many days, because I don’t see the world as she does and I struggle to understand how or to protect from the people that would abuse her because of this. What she senses eludes me at times and I’m trying to help someone that doesn’t need help but for the world to stop judging and imposing their expectations on her. To just stop. Stop being so loud, so demanding, so imposing, so much of everything.

Many have shared with me once that they’re offended by the puzzle piece symbol. The Autism Speaks rainbow puzzle piece has become ubiquitous with awareness around autism but the symbol itself has a negative connotation of implying that a person with autism is a “puzzle” to be solved, to be cured. This negative perception is only heightened by its origin of Autism Speaks creating its use seeing that they have come under fire from the society of autism for only investing towards a cure. A contentious outlook from those that believe autism is not a disease or disorder requiring a cure.

It’s unfortunate that so many parents use the puzzle symbol with wholly good intentions to represent the struggles that their children face and I understand why they identify with its use. They want to belong to a movement of awareness and for that I don’t blame or judge them. But, for me, I prefer the rainbow infinity symbol that represents neurodiversity and the acceptance of autism. Yet the use of either symbol doesn’t offend me or change my opinion towards the subject of autism or the people I love that are diagnosed. To me, it’s undeniably a large part of who they are and a physiological difference they have from others; however, it is only one aspect of them and not their entire identity.

So how do you explain all of that in terms that a neurotypical, average kid can understand? How do you create an activity analogous to autism to illustrate how autism feels to a child?

Well, that is exactly what we’ve undertaken these past two weeks. We’ve been preparing a presentation for my daughter’s Girl Scout troop and practicing answering questions that might come up. As we were eating lunch together, I asked her if she wanted to watch the video again today. She said yes and we watched it companionably in silence. It ended and I asked, like I do every time now, “Again?”

She smiled and said, “Yes,” with a giggle.

I hesitated and asked, “Nora, what does it feel like to be autistic?”

My throat tightened and I secretly hoped that she would share with me and not be upset with my question. That her feelings weren’t hurt by me pushing and prying a little further so that she would let me in to her world. Yet again, I was astounded by her insight that always seems to come unexpectedly and at an angle I could never predict.

“It feels amazing. I’m different but so is everyone else.”

Amazing Things Happen: http://amazingthingshappen.tv/?projects=amazing-things-happen

When acceptance isn’t accommodated

adhd, ASD, atypical, autism, equality, neurodiversity, parenting, special education, special needs

As a parent, your expectations about your life change the moment you realize that you’re bringing another life into the world that will be dependent upon you. Then your child is diagnosed as special needs and that additional responsibility shifts your expectations yet again. The word “accommodate” gains a different definition with the weight of its legal ramifications and societal implications. It denotes battles with educators. It signifies the appeal you make to family and friends to accept you and your children.

I went through a grieving process with each diagnosis for my son, then husband, then daughter. Each with its own set of revelations, challenges, and eventual adjustment. At first, I struggled to explain to others our circumstances hoping for acceptance in hopes of them staying in our lives. Then I realized that I couldn’t expect them to understand what they didn’t want to acknowledge. I can’t expect them to accommodate us any more than they can expect us to be neurotypical.

After so many last minute cancellations, or change in plans, people stop inviting you. The phone calls stop because they can’t hear you over the meltdowns in the background. They don’t want to deal with your kid but they don’t have the courage to tell you. The diagnosis is a downer to them and they don’t want to hear about it. They maybe see the signs of it in themselves or their kid and don’t want to discuss the topic lest they have to face it in their own life. They don’t believe in the diagnosis of autism. We’ve heard it all and all of it delivered with equal measures of good intentions and ignorance.

“They look normal are you sure they’re autistic?”
“Have you tried…?”
“Maybe they’ll grow out of it…?”
“We’re so sorry. Well, at least they’re not sick…”

The hardest days are the ones where no one is willing to accept them including myself. When I’m not accommodating them by being unreasonable. Now I don’t try to convince others what I know to be the truth. My kids are amazing.

If atypical means intelligent, polite, opinionated, creative, sensitive, and loving then I’ll take it over neurotypical any day. I can only assume that neurotypical should have the negative connotation since most of the kids who’ve abused, bullied, or traumatized my kids are considered “normal” .

With every passing year, I find myself adapting to yet another seismic shift in my perception of my family and struggling to find my footing. Yet the most painful is the trauma my kids have had to suffer. A close second is the loss of those I’ve cared about who won’t accept them. Their lack of accommodation cuts the deepest of all.

The true acceptance I hope for is that anyone who claims to love someone who is neurodiverse will learn enough about their condition to show them that they care and that they will always accommodate them in their heart.